General Practice Data for Planning and Research
From 1st September, GP practices nationwide will be required to supply patients’ personal and confidential medical information, on a regular and continuous basis, to NHS Digital, a project known as GPDPR.
The information will consist of your full (historic) GP record, as well as new information added to it on an ongoing basis.
Under the Health and Social Care Act 2012, GP practices have no choice but to allow NHS Digital to extract this information – it is a legal obligation. NHS Digital will become the data controller for that information, will administer the data, and intends to use it for planning health services, commissioning, population health management and for research.
This is known as secondary uses of your medical records.
Medical staff treating you in GP surgeries, hospitals, A&E and out-of-hours centres will not use, or be able to use, this database. They have access to all relevant medical information about you in other ways.
Although GP practices cannot object to this information leaving the practice, individual patients and their families can instruct their practice to prohibit the transfer of their personal data, i.e. you have the right to opt-out.
Opting out of GPDPR involves registering an objection at the surgery to all secondary uses of your personal identifiable data, where your explicit consent is not being sought beforehand.
This is known as a Type 1 opt-out – please click here for more information.
That factsheet tells you what a Type 1 opt-out does, and what it does not do. For example, it in no way prohibits the sharing of all relevant and necessary information required for your direct medical care.
The Type 1 opt-out form is here.
You will still need to opt out to prevent secondary processing even if you have already opted out of The Summary Care Record and/or previously the Kingston Health Passport, and/or Connected Care. How do I opt out?
· Fill in the opt-out form which can be found here.
• Hand it in to the surgery
• Post it to the surgery
• Email it to email@example.com/Swlccg.firstname.lastname@example.org
Where can I find more information about GPDFPR and other secondary uses of my GP record?
• NHS Digital https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research
• medConfidential https://medconfidential.org/for-patients/gp-2021/
• Understanding Patient Data https://understandingpatientdata.org.uk/news/our-perspective-new-system-gp-data